Diabetes Prevalence*

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About

Percentage of adults aged 20 and above with diagnosed diabetes (age-adjusted). The 2024 Annual Data Release used data from 2021 for this measure.

Diabetes is a chronic condition known to have broad impacts on physical, social, and mental well-being,1 and causes significant morbidity and mortality in the United States as the eighth leading cause of death.2

Data and methods

Data Source

Behavioral Risk Factor Surveillance System

The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based random digit dial (RDD) telephone survey that is conducted annually in all states, the District of Columbia, and United States territories. Data obtained from the BRFSS are representative of each state’s total non-institutionalized population over 18 years of age and have included more than 400,000 annual respondents with landline telephones or cellphones since 2011. Data are weighted using iterative proportional fitting (also called "raking") methods to reflect population distributions. Data from the BRFSS are used to measure various health behaviors and health-related quality of life (HRQoL) indicators in the Health Snapshots and downloadable datasets. HRQoL measures are age-adjusted to the 2000 U.S. standard population. 

Prior to the 2016 Annual Data Release, up to seven survey years of landline only BRFSS data were aggregated to produce county estimates. However, even with multiple years of data, these did not provide reliable estimates for all counties, particularly those with smaller respondent samples. For the 2016 Annual Data Release and beyond, the CDC produced county estimates using single-year BRFSS data and a multilevel modeling approach based on respondent answers and their age, sex, and race/ethnicity, combined with county-level poverty, as well as county- and state-level contextual effects.1 To produce estimates for those counties where there were no or limited data, the modeling approach borrowed information from the entire BRFSS sample as well as Census Vintage population estimates. CDC used a parametric bootstrapping method to produce standard errors and confidence intervals for those point estimates. This estimation methodology was validated for all U.S. counties, including those with no or small (< 50 respondents) samples.2 This same method was used in constructing the 500 cities study, which includes BRFSS data for the 500 largest cities in the U.S.  

For the 2021 Annual Data Release, the CDC has updated their modeling procedure for producing small-area estimates. With the PLACES project, a multilevel statistical modeling framework using multilevel regression and poststratification (MRP) is performed for small-area estimation that links BRFSS data with high spatial resolution population demographic and socioeconomic data from the Census’ American Community Survey (ACS). The CDC has performed internal and external validation studies, which confirm strong consistency between their model-based estimates and the direct BRFSS survey estimates at both the state and county levels. For more technical information on the PLACES modeling procedure, please see their website.3 

1Zhang X, Holt JB, Lu H, Wheaton AG, Ford ES, Greenlund K, Croft JB. Multilevel regression and poststratification for small-area estimation of population health outcomes: a case study of chronic obstructive pulmonary disease prevalence using the Behavioral Risk Factor Surveillance System. American Journal of Epidemiology 2014;179(8):1025–1033. 

2Zhang X, Holt JB, Yun, S, Lu H, Greenlund K, Croft JB. Validation of multilevel regression and poststratification methodology for small area estimation of health outcomes. American Journal of Epidemiology 2015;182(2):127-137. 

3PLACES Project. Centers for Disease Control and Prevention. Accessed March 9, 2021. https://www.cdc.gov/places

Key Measure Methods

Diabetes Prevalence is a percentage

Diabetes Prevalence is the percentage of adults ages 18 and above with diagnosed diabetes in a given county.

Diabetes Prevalence estimates are age-adjusted

Age is a non-modifiable risk factor, and as age increases, poor health outcomes are more likely. We report an age-adjusted rate in order to fairly compare counties with differing age structures.

The method for calculating Diabetes Prevalence has changed

With the 2022 Annual Data Release, the source for this measure changed from the United States Diabetes Surveillance System to the Behavioral Risk Factor Surveillance System (BRFSS).

Diabetes Prevalence estimates are created using statistical modeling

Surveys collect information about a limited portion of a population. Statistical modeling can be used to predict how people who share certain characteristics with those surveyed may have responded to the survey. Modeling can increase the power of survey data by generating more stable estimates for places with small numbers of residents or survey responses. The Diabetes Prevalence estimates are produced from one year of survey data and are created using complex statistical modeling. For more technical information on PLACES modeling using BRFSS data, please see their methodology.3 

There are also drawbacks to using modeled data. The smaller the population or sample size of a county, the more the estimates are derived from the model itself and the less they are based on survey responses. Models make assumptions about statistical relationships that may not hold in all cases. Finally, there is no perfect model and each model generally has limitations specific to its methods.

Caution should be used when comparing these estimates across states

Estimates may not be comparable across states because of methodological changes discussed in “The method for calculating Diabetes Prevalence has changed”.

Caution should be used when comparing these estimates across years

Estimates may not be comparable across years because of methodological changes discussed in “The method for calculating Diabetes Prevalence has changed”.

Numerator

The numerator is the number of adults 18 years and older who responded "yes" to the question, "Has a doctor ever told you that you have diabetes?" Both Type 1 and Type 2 diabetes diagnoses are included. Women who indicated that they only had diabetes during pregnancy were not considered to have diabetes.

Denominator

The denominator is the total number of respondents (age 18 and older) in a county.

Can This Measure Be Used to Track Progress

There are substantial limitations to using this measure to track progress. Modeled estimates have specific drawbacks with their usefulness in tracking progress in communities. Additionally, methodological changes limit the ability to track progress across years using this measure. For more information on methodological changes, see above.

Finding More Data

Disaggregation means breaking data down into smaller, meaningful subgroups. Disaggregated data are often broken down by characteristics of people or where they live. Disaggregated data can reveal inequalities that are otherwise hidden. These data can be disaggregated by:

  • Age
  • Gender
  • Race
  • Education
  • Income
  • Subcounty Area

The PLACES Project provides county-, city-, census tract-, and zip code-level small-area estimates for chronic disease risk factors, health outcomes, and clinical preventive service use, including Diabetes Prevalence, across the United States.

For larger counties, you can access county- or MSA-specific data from the CDC. However, using this data requires somewhat advanced analytic capabilities. In many states, you can access county level BRFSS estimates, and in some cases, you can stratify those estimates by age, gender, education, income, or race.

References

1 Diabetes and Mental Health. Centers for Disease Control and Prevention. Last reviewed May 7, 2021. Accessed December 21, 2023. https://www.cdc.gov/diabetes/managing/mental-health.html.

Centers for Disease Control and Prevention. What is diabetes?. 2023. Accessed December 21, 2023. https://www.cdc.gov/diabetes/basics/diabetes.html

3 PLACES: Local data for better health. Centers for Disease Control and Prevention (CDC), Robert Wood Johnson Foundation, CDC Foundation. Accessed March 9, 2021. https://www.cdc.gov/places